It’s good to be home!

We arrived back in Calgary on Tuesday. The flights were good although the connection in Toronto was a wee bit rushed. I don’t think we’d have made it if I didn’t have the wheelchair priority service.

It’s a little bit cooler here than it was in Tel Aviv, I think my Canadian blood got a little thinner because I’m feelin the cold. The absence of hair probably doesn’t help either.

The goal of the treatment was to stop disease progression but I did notice some improvements immediately. My fatigue has vastly improved. Don’t get me wrong I’m not a whirlwind of activity now but I no longer feel like I could sleep all day despite having stopped the stimulants (modafinil and caffeine). Also the chronic soreness in my feet and eyes has disappeared, which is nice. I may still see more improvements over time but all I can do is wait and see. Improvements are a bonus, not getting worse was the goal. Only time will tell.

A big thank-you for all the help I’ve received from family and friends that allowed me to get this treatment.

A huge thank you to my parents who not only allowed me to have this done but even signed up to be my nurses/ babysitters while having the treatment done.


Day 19

Saw Prof Slavin this morning, got the thumbs up! We’re still trying to sort out the flight home but should be Wednesday night, if we’re lucky tonight. I’m not out of the woods yet; my immune system will be very sketchy the first three months from day 0 so I’ll be mostly hiding out avoiding infection but all in all a pretty good start. Looking forward to continuing recuperation at home.